So Wednesday was a verry long day, but with very good results. The MRI showed that although Oli's brain has changed a bit since his last MRI, they do not see any obvious reasons for seizures or the need for a shunt. This is such a relief, since I really thought that we might be going the way of a shunt. He also hasn't had any seizure-like activity in almost a week, so I am hoping that has passed, as well. As always, we are in a wait and see phase. But I'll take that over needing to to get a shunt or seeing a problem that could be causing the seizures. We are going to follow up with neurology, although the wait time for an appointment is insane.
The whole MRI process took so long on Wednesday that we wound up missing our clinic appointment. But Oli did get his new AFOs (ankle-foot orthotics) and got measured for his KAFOs (braces that extend AFOs to brace the knee and support the hips). He has been doing extremely well learning to stand since we took his full casts off two weeks ago, and I am hoping that the KAFOs will give him the support he needs to stand on his own. I don't really know what to expect in terms of him standing or walking (more "wait and see"), but he has exceeded our expectations at every turn. Hopefully he will continue to do so.
To make the KAFOs, the orthotist had to make a mold of Oli's butt. I made Tim take a picture and will upload it as soon as I get it off of his phone. I felt silly enough taking a picture, but really wanted to ask if we could have the mold when they were done with it. Luckily, I restrained myself.
Our next steps are to follow up with neurology, reschedule clinic, and make a hearing test to see if that can explain his minor delay in speaking. Getting through Wednesday was a big deal, and I'm excited to keep moving forward.
