My
Oli boy is in casts again. I didn't want to do it, but after a month
with a pressure sore, he couldn't get in his braces anymore. So every
week, we go to King of Prussia and get his casts switched out. each time
the doctor alters the angle of his foot just a but, so that by
November, he should be able to fit in his braces again. In that time, he
has to give up swim lessons and swimming in Florida. He was a little
disappointed about swim, and hasn't realized yet about Florida. We'll cross that bridge when we come to it, I guess
On
the up side,he is rocking in school! He is so much more articulate in
telling me what he does each day, and who his friends are. He has made
plenty, which makes me feel better about him having to split from his
friends from last year, who moved on to first grade. He is so interested
in books now, and we try to count everything. Basically, he is so much
more inquisitive now, and I think that is a big part of what was lacking
last year. Fingers crossed for a successful school year, so that a) he
enjoys himself, and b) he can promote to regular ed in first grade.
However, whether he promotes to regular or special ed in first grade,
I'm glad we gave him this extra year of foundation.
We
got funding for a ramp, which is the process of being built now. I
can't wait for it to be done, since he will be able to get into the
house without being carried. We also had a wheelchair height seat built
into our countertop when we had the kitchen redone, and are working on
getting funding to redo the bathroom. I hope that within the year, we
will have a house that is Oli-accessible, and lets him feel empowered
(even if he wasn't feeling in-empowered, I want him to grow up feeling
that the house is built as much for him as for anyone else).
Finally,
his bowel program seems to be working, so we are going to look into
self catheterization when we go to his clinic appointment in November.
I'm not sure it will be time yet, but we are getting closer to
underwear! Our goal was first grade (or, I guess, age 6), so we are
right on track.
Whew.
There is more, but these are the highlights. Oli is still cute, sweet,
and very much my little boy. However, I can see a bit more "big kid" in
him as he comes into his own.
